Demonstrators advocate for enhanced medical treatment for cystic fibrosis patients in Latvia
In Latvia, parents of children affected by cystic fibrosis are demanding equal treatment for all patients with this diagnosis. The protest, scheduled for May 9 - Europe Day, is a symbolic question to Latvian deputies about the value placed on every person's life in Latvia.
Under the reimbursable medical care system, these parents are due to receive the most effective medications for their children. However, this year, they have not been given these medications. These medications, known to extend the survival of patients with cystic fibrosis and save lives, are a crucial part of the treatment.
The lack of these medications has led some parents to consider seeking treatment for their children in other European countries. The group of parents of children with cystic fibrosis has addressed the Bundesverband Mukoviszidose e.V. (Federal Association Cystic Fibrosis) to receive support for their campaign advocating better and equal treatment standards for all affected individuals. This association, which has been supporting people with cystic fibrosis and their families for over 60 years, provides assistance and advocacy for those affected.
The protest, which will take place in Latvia, is intended as a call to action for Latvian deputies. During the protest, parents will symbolically ask Latvian deputies whether every person is important to Latvia. The protest is specifically chosen for this date, signifying the unity and importance of Europe and its citizens.
The number of patients diagnosed with cystic fibrosis in Latvia is more than 50. The parents' demand for equal treatment is not just for their children, but for all patients in Latvia who are affected by this condition.
This protest serves as a reminder of the importance of accessible and effective healthcare for all, especially for those with life-threatening conditions like cystic fibrosis. The parents' determination to seek change highlights the need for improved healthcare policies and funding in Latvia.
