Experiencing a sense of relaxation brings about joy for this Angel mother
Margarida Maia, a mother of a 13-year-old girl named Juliana who lives with Angelman syndrome, woke up feeling well-rested on Mother's Day, contrary to her expectations. Despite the usual mayhem that comes with the month of May, Margarida found herself brimming with energy.
As a PhD holder and an active member of the Angelman community, Margarida has been juggling constant engagement and occupation required by Juliana's hyperactivity, dealing with illness, meltdowns, appointments, and tantrums. However, on this special day, Margarida did not spend the morning lounging in bed but instead tackled projects around the house.
The cause of Margarida's unexpected energy remains a mystery, but it allowed her to make the most of the day. In the week leading up to Mother's Day, Juliana had a talent show to attend, which they had to leave early due to Juliana's iPad dying. Despite the inconvenience, Juliana received an award at the show, adding a delightful touch to the day.
Margarida, as the mother of an Angel, often feels she never has enough downtime. In the past, she hesitated to express her desire for a tranquil Mother's Day, fearing it might seem selfish. But this year, she found herself embracing the peace that the day offered.
The Angelman Syndrome Foundation recently partnered with Margarida to improve the outreach and communication of information within the Angelman community. Margarida has also been practicing more self-care to manage stress this month.
It's important to note that the article does not provide medical advice, diagnosis, or treatment. Always seek professional medical advice when dealing with a medical condition. The opinions expressed in the article are not those of Angelman Syndrome News or its parent company, Bionews.
This news piece is intended to spark discussion about issues pertaining to Angelman syndrome and the experiences of families living with it. Margarida calls the activities of May "mayhem," and the end-of-school-year activities and celebrations only add to her already full plate.
Before shopping for new garden plants for Mother's Day, Sabrina, presumably a family member, took a photo with her family. Despite the challenges, Margarida is grateful for the love and support she receives from her family and the Angelman community.
As we continue to learn more about Angelman syndrome and find ways to improve the lives of those affected, stories like Margarida's serve as a reminder of the strength and resilience of families living with this condition.
