Understanding the intricacies of our child's joyful disposition
In a heartwarming story that sheds light on Angelman syndrome, Elizabeth Duarte, a mother, shares her experiences with her son, Jude. Diagnosed with Angelman syndrome at the age of 16 months, Jude's life has been a testament to the power of joy and the resilience of the human spirit.
Frequent smiling and laughter are hallmark characteristics of Angelman syndrome. Jude's smile and laugh can be warm, pure, cheeky, or full-bellied, captivating anyone who crosses his path. His cheerful personality has drawn attention from strangers, particularly at the swimming pool, where people often comment on his infectious happiness.
However, the parents initially questioned whether Jude's happiness was due to spending time with them or because of Angelman syndrome. Over time, they have realized that his joy is an intrinsic part of him, a characteristic that sets him apart. Strangers have reassured the parents that Jude's happiness is likely due to his genes.
Smiling and laughter in individuals with Angelman syndrome occur most frequently during social interactions, particularly associated with eye contact. Jude's happiness can wake his parents up in the middle of the night, a reminder of the profound impact his joy has on those around him.
The parents have had negative thoughts about how Jude might be perceived by strangers, particularly concerning his ability to coordinate movements, self-feed, and stand. However, they have started exercising and therapy to clear their minds when they have these thoughts. They have come to understand that negative thoughts are unhelpful and unproductive.
The parents' hopes and dreams for Jude are much simpler: they wish for him to always feel happy, safe, and loved. They initially hoped that Jude might one day walk or communicate his thoughts and needs, but their response was much simpler. They hope that he will continue to be the beacon of joy that he is today.
It is important to note that this article is a news and information website about Angelman syndrome and does not provide medical advice, diagnosis, or treatment. Always seek the advice of a physician or other qualified health provider with any questions regarding a medical condition.
The author, Elizabeth Duarte, invites readers to join her in celebrating Jude's journey and the lessons his joy teaches us about the importance of happiness and acceptance. Despite the challenges that come with Angelman syndrome, Jude's story serves as a reminder that joy knows no boundaries.
